We’ve had such a good response to this feature and so many women have been encouraged by Danielle’s story. Today, we’re going to share Alleyne’s story with PCOS.
Alleyne is 31 and lives with her partner. She is also a weight management counsellor – helping people with eating distress, looking at relationships with food, behaviour etc on a 1:1 basis.
Alleyne has had a long and difficult road with PCOS but she also has a story of hope. She explains how her PCOS diet is an important part of managing her PCOS and how she has struggled with fertility. I was really touched when reading her story and I hope you find as much hope and inspiration in her story as I did!
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When and how were you first diagnosed with PCOS?
I was diagnosed when I was about 15. My periods were just erratic and it wasn’t until I had some tests that I was diagnosed properly.
How did you react to getting the diagnosis?
To be honest, I didn’t care. I guess it was because I was too young to realize the impact it would have on my life. As I was at an age where I didn’t want to think about periods, babies etc, I just ignored it and just carried on with life. It wasn’t until later in life when I was settled that I realized how much it truly affected me.
What is your biggest frustration with PCOS?
Where do I start. My weight is very hard to manage. Skin complaints are embarrassing but my biggest frustration is the fertility side. I can go 3 months without a cycle and have had issues with fertility ever since I decided I wanted to start a family.
How do you manage your PCOS? (Medication, diet, exercise, etc)
A PCOS diet is important. I manage my weight by watching what I drink and eat. Water is a must for me and fizzy drinks are a no no. I don’t eat after 8pm if I can help it and I lost a lot of weight (over 3 stone) using a very low calorie diet after my doctor recommended it for my PCOS.
What is your biggest success in terms of PCOS?
Falling pregnant. I honestly didn’t think it would happen for me.
I have a child from a previous relationship. He is now nearly 8 and I was trying to conceive him for about 2 years. Due to my PCOS, I lost weight and was attending fertility clinics at the local hospital so that involved me having a laparoscopy to remove cysts, I was also on 100mg of clomid and going in to have ultrasounds to check when the best time to conceive would be.
When I started a relationship with my current partner in 2007, we decided naturally that we wanted to start trying for a family. I was aware that with me having PCOS it may be a bit difficult so after about 6 months of trying we went to the doctors. They put me on 50mg of clomid for 3 months but that didn’t work. We were then referred to a fertility clinic for tests. It was discovered that I wasn’t ovulating and the clomid hadn’t helped me so they needed to do some investigating. I had a laparoscopy and that revealed that I had scar tissue from when my son was born. I also had cysts that needed lasering away again. However, whilst having the operation, I decided to stop breathing so they needed to stop the operation and concentrate on my recovery. This meant I wasn’t able to have scar tissue or cysts removed. At the same time, budgets were being cut so the hospital decided that as I had a child from a previous relationship, that I wouldn’t get any more treatment. They told us we needed to pay for private treatment which was a no go for us.
We decided to see what would happen. It would be the elephant in the room though. I was losing weight to try and live a healthier life in the hope it would help my PCOS and symptoms. However, we just didn’t talk about trying for a baby anymore. Occasionally we would open up but it was always we will have IVF next year and I started looking into surrogacy. My partner was against it as he wanted a child with me not someone else but I was surprisingly ok about it. As I wasn’t ovulating, we knew that using someone elses egg would be the way forward. So I would occasionally research into it, the costs, implications etc but it wasn’t in my partners mind as a serious plan.
It was heart breaking as I was so desperate for a baby with him. He has no other children and is an amazing step father to my son and treats him as his own and I guess we both thought it would never happen. As a woman it’s such a sad feeling
to know that you can’t fall pregnant. You start blaming yourself and get jealous when everyone else seems to fall pregnant at the drop of a hat.
Suddenly in August after a birthday weekend away, I had a dream that I was pregnant. It was so vivid and someone was telling me to do a test so I got up, decided to do a test not expecting to see those 2 pink lines! WOW WOW WOW
I was screaming down the stairs, crying you name it I couldn’t believe my eyes. My partner didn’t believe it. As it was one of those cheapy tests you get off ebay, he said we needed to get an official expensive test so off we went to a supermarket and I brought a clearblue test (the one that sais how far gone you are and the actual words as I didn’t trust the 2 lines). As we stood there, I couldn’t bring myself to look at it and suddenly my partner started screaming with joy and we both burst into tears.
Dumbstruck are the words I would use to describe it. We have no idea how it happened as by this point we had literally given up hope, weren’t looking at fertile days as I thought I wasn’t ovulating and we were just getting on with life. Even yesterday when I felt my baby move and was telling my partner about the baby moving, he said he just can’t believe it’s happening to us and it’s such a blessing.
We are just over the moon about our miracle that will be born in April next year. Everything about this pregnancy (apart from morning sickness) I am grateful for as I never thought I would ever experience a pregnancy let alone another child again.
Who do you get emotional support from?
No one really. On a day to day basis it doesn’t enter my mind. It’s only when I was trying to a family that I found it hard. It’s amazing how many women suffer from it.
What would you like to say to other women with PCOS or those who have just been diagnosed?
Keep calm and read up about it. There’s amazing sites out there and diet books that can help. With the right help and support, you can control the PCOS instead of it controlling you.
If you want to inspire others and have your own PCOS story to tell, please contact me here. I’d love to hear from you!
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Thanks very much dearest for your beautiful stories,
am married since 2010 and I have been trying for babies since that time but no way out,in November 2010 I got miscarriage 16 WEEKS pregnant ,then Decmber 2011 again I got miscarriage 2month pregnant until june,july 2012 I concerve again and miscarriage 2012 November again,so painfull am overweight(obesity),am not using any means of contraceptive but getting pregnant for me is an issue as you can see from one pregnant to another it took several month,current I miscarriage again 19weeks pregnant in November this year,I think am going craiz with sadness for sure dears,cause when my pregnant was 13weeks doctor try to put a band of stitch at my cervice to prevent membrane rupture but no way out I miscarriage at 19week despite the presence of the stitch now am trying to loose weight and then hope everything will be oky for me,I dont have any child.
I was diagnosed with PCOS in March but suspected I had it for a few years now. I have had long bleeding spells at least three times, the longest lasting for six months. The last occurence was 3 weeks ago and I decided to visit a new gyn/ob. She ordered hormone tests, blood tests etc. I just got the results and one good thing is that my glucose level is normal (79) but my testosterone levels are higher than normal for the beginning and end of the cycle. However, being so irregular, I have no idea at what stage of the cycle I was when the blood was taken. Also, my progesterone level is low (below 0.21). I am due to see the doctor in two weeks for a full explanation of the results. In a previous test I did in March 2013, my thyroid stimulating hormone level was normal.
Any tips/first impressions, Tarryn? My doc mentioned that it may be difficult to get pregnant and I would very much like to be a biological mother even if it’s just one child. I have been married almost seven months now.
Hi, im 20 years old and i just found out i have PCOS, do you think that when you were younger it wouldve helped if you took birth control pills to help control your period. I was very happy to hear that you had a baby . I hope in the future that getting pregnant isnt going to be an issue for me, you were very blessed.
Hi I was told by my fertility doctor that being on the birth control pill was good. I have PCOS and didn’t know until I couldn’t get pregnant. It took me 3 years and 3 cycles of in vitro but I have 2 beautiful kids. Being on the pill regulates your cycle and keeps your hormones more regulated I went on ortho tri cyclen -lo when I was 17 . It cleared my acne and helped regulate my period. Metformin is also helpful but talk to your doctor about it. Good luck. It’s unfortunate to have PCOS but its good that you found out at a young age… Most of us don’t find out until we can’t get pregnant… Now u can take good care of yourself and preserve your fertility!! Good luck and GOD BLESS! -heather
I have been diagnosed with PCOS too 3 years ago as I was not losing any weight despite going to the gym 4 times a week, eating healthy and had period only 3 times a year. After being put on the pill, I finally managed to lost weight (14 KG in a year!), and having period monthly is something that I feel better about as feeling more like a normal person.
I am still not in the stage to have a baby yet but I do suggest you to take the pill as it has seriously changed my life.